Happy Dyslexia Awareness Month!

Image

October is Dyslexia Awareness Month.  Below is a list of events from the International Dyslexia Association – Upper Midwest Branch.  I have provided links to register for the events on the title of the event.  Hope to see you at some point this month.  Let me know if you are going to an event.  I will definitely be at the screening of The Big Picture: Rethinking Dyslexia with #1 and #2.  It’s pretty embarrassing that I haven’t seen it yet!  I have heard it excellent.  There is also an interesting webinar about assessment if you have questions after reading my post yesterday, What do I do if my child is struggling with reading?

If you don’t live in Minnesota, please check the International Dyslexia Association website for events in your area.

Dyslexia Awareness Month Events


Learn more about dyslexia and other language-based learning disorders at one of these dynamic October events!

IDA-UMB Webinar:  Deciphering the Tests 

Tuesday, October 1, 2013

7 — 8 p.m.

Registration is free, but space is limited!

CEUs available for $10 fee.

The information provided in tests and assessments is invaluable in determining an LD learner’s cognitive strengths and weaknesses and helps inform the best approaches to the child’s education. This presentation will review what tests commonly are used to assess learning difficulties, what they mean and how parents and educators can utilize them to develop effective plans for special education.

Speaker, Ray Boyd, is a Minnesota Licensed Psychologist and the director of diagnostic services at Groves Academy who has been working with children and adults with learning disabilities and attention disorders for nearly forty years.

Groves/IDA-UMB Workshop: 

Why Word Origin and Structure are Critical to Reading Success

Thursday, October 3, 2013


6:30 – 8:30 pm


Groves Academy, 3200 Hwy 100 South, St. Louis Park, MN 55416

Registration is $30

Presented by Marcia Henry, Ph.D., Professor Emerita, San Jose State University Morphology, or the study of the structure and origin of words, describes how words are formed from building blocks called morphemes, which are the smallest units of meaning in a word. This 
session will provide an overview of morphology and why it is important to explicitly teach these skills to early or struggling readers.

IDA-UMB Webinar:  School SLD Assessment vs. Private Neuropsychological Assessment

Wednesday, October 9, 2013


7 — 8 p.m.


Registration is free, but space is limited!
 CEUs available for $10 fee.

School testing and diagnostic neuropsychological testing are different in their purpose and depth, the specifics of their results and scope of their recommendations. In this webinar you will learn several key distinctions between the two types of assessment so that you can make an informed decision about which is best for your child.

Jennifer Bennett, M.S., Licensed Psychologist, focuses her work on neuropsychological and educational assessment. At BrainWorks, P.A., her private practice, she conducts comprehensive evaluations with people ages 5-100 who are experiencing difficulties related to learning, information processing, and cognitive development.

FREE SCREENING — The Big Picture: Rethinking Dyslexia

Saturday, October 12, 2013


1 — 3p.m.


Groves Academy, 3200 Hwy 100 South, St. Louis Park, MN


Registration is free, but space is limited!

Join IDA-UMB and Groves Academy for a free screening of the HBO film, The Big Picture: Rethinking Dyslexia, directed by Robert Redford’s son and the father of a child with dyslexia. The film provides personal and uplifting accounts of the dyslexic experience from children, experts and iconic leaders. The screening will be followed by comments and a question-and-answer session with Head of School, John Alexander, IDA-UMB President Kelly O’Rourke Johns, Executive Director of The Reading Center, Cindy Russell, and others.

The Reading Center’s Dyslexia Simulation: Walk in My Shoes

October 15, 2013


7 — 8:30 p.m.


Premier Bank, North Broadway and 37th Street, 3145 Wellner Drive NE, Rochester, MN

Is there a dyslexic person in your life? Do you teach a dyslexic student? You will learn what it can feel like to be dyslexic in school when you participate in this Dyslexia Simulation. The session will last 1 1⁄2 hours and is highly participatory. Appropriate for older teens through adults.

Film Screenings – Dislecksia: The Movie


Thursday, October 17, 2013

3 locations:

Carmike 10 Theatre, 230 Knollwood Drive, Rapid City, SD – 7 p.m.

Cinemark Century 14, 2400 South Carolyn, Sioux Falls, SD – 7 p.m.

TBA, Minneapolis, MN – 7 p.m

A powerfully touching and entertaining documentary that mixes humor and perspective with insight and analysis, DISLECKSIA: THE MOVIE explores many of the misconceptions surrounding dyslexia, while underlining the need for stronger awareness, early identification and social change.

No stranger to the condition, director Harvey Hubbell V explores dyslexia through a very human, personal lens, weaving his own lifelong experience, the research of scientists and the practice of educators, with the individual experiences of celebrities, politicians, and adults and children living with dyslexia.

Intergenerational, multicultural and socio-economically diverse, DISLECKSIA: THE MOVIE presents a complete picture and the most current information on dyslexia, promotes positive messaging, explores the power of family and community and is the first film to offer an alternative perspective of dyslexia as a learning difference, rather than a disability.

Panel Discussion: Successful Adults with Dyslexia

October 24, 2013

6:30 p.m.

Rochester Public Library Auditorium, 101 2nd Street SE, Rochester, MN

Registration is free but space is limited.

People with dyslexia are disproportionately represented among entrepreneurs and CEOs. Come to this panel discussion involving local individuals who are successful in their fields not despite of, but BECAUSE of dyslexia.

Parents, teachers and students (later grade school age and up) are encouraged to attend this discussion with local, successful adults who struggled with dyslexia throughout their schooling years, yet have found success in their careers. Hear their personal stories, learn some of their coping mechanisms and be inspired by how they became successful in a world of print.

Participants include: Dr. Brooks Edwards, Director, Transplant Center, Mayo Clinic; Lisa Stelzner, Senior Account Manager, Tempus Nova; Donn Sorensen, President, Mercy East Regional Medical Center

Advertisements

What do I do if my child is struggling with reading?

Hope you win the lottery.  Seriously.

First, I’m so sorry.  It’s painful.  It’s difficult to have your child’s independent reading sheet look like this.

blank reading sheet

You begin to wonder what you did wrong and what more you should have done.  Listening to others talk about how their kindergartener is reading and equating that to intelligence or fantastic parenting or how often they brought their child to the library can be heart wrenching , especially when you thought your child was kinda smart, you were and OK parent and you have enough library fines to prove you do in fact visit libraries.  You wonder what is wrong with your child that should be on the road to reading, but for some reason is just not getting it.  The child that you thought was so normal in preschool is suddenly struggling and you feel like you are in the middle of an incredibly slow moving train wreck.

As the parent of this child, you need to find some resources and educate yourself about what dyslexia is and what it isn’t.

The International Dyslexia Association defines dyslexia as:

It is characterized by difficulties with accurate and / or fluent word recognition and by poor spelling and decoding abilities. These difficulties typically result from a deficit in the phonological component of language that is often unexpected in relation to other cognitive abilities and the provision of effective classroom instruction. Secondary consequences may include problems in reading comprehension and reduced reading experience that can impede growth of vocabulary and background knowledge.

Studies show that individuals with dyslexia process information in a different area of the brain than do non-dyslexics.

Many people who are dyslexic are of average to above average intelligence.

A great book is Overcoming Dyslexia.  But beware, if you are like me you can read a book on ANY SUBJECT and start diagnosing yourself, your children and especially…your spouse.  A related website is the Yale Center for Dyslexia and Creativity.  There is a lot of great information here about interventions and advocacy.

Your first resource should be your child’s teacher.  If you have a good relationship with him/her and you trust them, be very honest and share your worries, observations and fears.  Everyone learns to read at different times.  If you child is behind, but making progress, its possible they are just a late bloomer.  But, if interventions have already been tried, no progress is being made, and there are no other reasons why reading should be struggle then its time to look for help.

Another good resource is your pediatrician.  These people see a WIDE range of children and many times have a good feel for when to worry and when not to worry.  Many times doctors have a good educational psychologist they can recommend if this is the direction you should go.

If you live in the Twin Cities, I suggest people contact Groves Academy.  It’s very expensive, but you can trust they are going to do a very thorough job assessing the strengths and weaknesses of your child and helping you come up with a plan.  I believe that going to an educational psychologist is very important for learning disabilities.  Sometimes a neuropsychologist or something who works more in a hospital setting doesn’t have the educational background and they give a different battery of tests and someone with an education background.  #2 was tested twice within months of each other with VERY different results.  The difference came with the educational psychologist giving him a phonemic awareness test, whereas the neuropsychologist left that out.  Without a test on phonemic awareness there is no way to diagnose dyslexia, since this is one of the telltale signs.  Sadly, if you rely on the school district, many times the help your child needs can take months or even years.  Of course, you will still need to go through the school district to get direct help from them, but if you already have an assessment in your hands from an outside source, many times teachers will use this information for accomadations, interventions and to move a 504 or IEP forward.

While all this is going on, continue reading out loud to your child and/or have them listen to books.  There are many ways to read, and reading with your eyes is just one way to enjoy books.  Listening is another great way.  The important thing is that your child views books as something enjoyable and something “for them.”

Another word of advice, find support, especially from other parents who understand the pain of having a child that struggles in school.  Having a child that struggles can be very isolating.  It’s really easy to feel judged, because, let’s be honest, there is a lot of stigma that goes along with having a child that is struggling in school.  If you can’t find someone near you, keep checking back with this blog!  One of my goals about being so open with my journey is to help other parents know they are not alone.

Last word of advice….go for a run.